News

Keep up with the latest news from the NCI Center for Biomedical Informatics and Information Technology (CBIIT) and the data science communities.

If you’re working with adverse event cancer and immune-related data, USCDI+ program staff need to hear from you! See how you can give your feedback on the new USCDI+Cancer draft data set.

Learn about the Childhood Cancer Data Initiative’s national strategy for studying children, adolescents, and young adults with very rare cancers. The Pediatric, Adolescent, and Young Adult Rare Cancer Initiative supplies researchers (like you) the data requirements for collecting data from study participants.

Help define the data standards that will make data in the USCDI+ Cancer Registry interoperable with data collected for clinicals, public health, and research. Submit your feedback by Monday, September 23, 2024.

NCI’s Childhood Cancer Data Initiative seeks your feedback for the Pediatric Cancer Core Common Data Elements, a newly created resource which facilitates data integration and analysis.

NCI staff contributed to an October 2023 publication that highlights how the Global Alliance for Genomics and Health (GA4GH) coalition is creating a more equitable, diverse, and inclusive environment within its standards and members. This is to prevent continuing biases in genomics data collection methods and the genomics workforce. By taking actions to address such changes, the GA4GH coalition hopes to inspire others to do the same and make genomic data more representative of the global community.

Explore this challenge if you’re a software tool developer interested in assessing how well your tool de-identifies medical images.

Thanks to a unique public-private partnership, new data elements will soon be a routine part of electronic health records, capturing information about cancer and helping to improve cancer diagnosis, treatment, and care.

Find harmonized demographic and clinical data in this new data commons from NCI’s Childhood Cancer Data Initiative!

Are you planning to attend this year’s American Association for Cancer Research (AACR) Annual Meeting? Make sure to add these NCI-affiliated data science activities to your schedule!

Attending the AMIA 2024 Informatics Summit? Don't miss these NCI CBIIT-affiliated data science sessions!