Cancer Data Science Pulse

Data Standards

Patients play a pivotal role in cancer research by generously giving the “gift” of data. In this blog, Dr. Jaime Guidry Auvil of NCI’s Office of Data Sharing looks closely at that gift and what it means for everyone involved in cancer research—scientists, people with cancer, their families, and generations to come.

NCI recently hosted a two-day workshop with more than 600 developers, researchers, and data scientists from the United States, Canada, and the European Union. Participants addressed some of the challenges of removing personal information from medical images—a process called de-identification. This blog features highlights from the workshop.

Common Data Elements (CDEs) are a key component of NCI’s semantics infrastructure. CDEs allow us to assign meaning to data in a way that’s predictable, consistent, and persistent across time. In this blog, CBIIT’s Ms. Denise Warzel and Dr. Gilberto Fragoso take a deep dive into CDEs and show how they help researchers define, map, and use data more efficiently.

Dr. Vivian Ota Wang shares her perspectives on data bias and outlines ideas for making data more equitable, fair, and useful to the greatest number of people, all of which would benefit cancer research.

Hear from CBIIT’s Chief of the Clinical and Translational Research Informatics Branch as he gives advice on how to conduct a research project using data science and the value data science brings to supporting the cancer research community.

How can data science support your cancer research? Explore this helpful quick start guide to find out! We’ll show you an overview of how data science enhances cancer research and how you can get started applying it to your work.

Did you ever wonder what goes into making data ready for analysis by researchers around the world? In this video blog, meet "Datum," a single speck of genomic data chronicling how NCI supports cancer research by bringing data to life.

Read the blogs that topped our charts in 2022 and see if your favorite made #1!

Ever wonder what it’s like to work on a data ecosystem? Meet software engineer Ming Ying, and website specialists Hannah Stogsdill and Ambar Rana, as they describe what it’s like to design, develop, implement, and maintain NCI’s Integrated Canine Data Commons.

Watch our time capsule video to learn about the current status of the field and new technologies that are sure to be important as we embark on the next era of cancer data research.