Cancer Data Science Pulse

Policy
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Whose Data Is It, Anyway?

For this year’s “Love Data Week,” we talked to NCI’s Office of Data Sharing about data ownership. Learn more about this topic and how you can access data sharing resources for supporting your work.

Laptop displaying the NCI Cancer Data Science Pulse webpage with the text, "CBIIT's top Blogs of 2023"

The 12 Blogs of CBIIT—Your Favorite Data Science Reads from 2023

Read the blogs that topped our charts in 2023, and see if your favorite made #1!

"A gift box springs open showing data (represented by brightly colored dots and the numbers 1 and 0) spilling out in all directions. Illustrates the "gift" of data.

Data as a Gift—A Common Theme from NCI’s First Office of Data Sharing Symposium

Patients play a pivotal role in cancer research by generously giving the “gift” of data. In this blog, Dr. Jaime Guidry Auvil of NCI’s Office of Data Sharing looks closely at that gift and what it means for everyone involved in cancer research—scientists, people with cancer, their families, and generations to come.

Headshot of Vivian Ota Wang, Ph.D.

Trusting the Data—A Look at Data Bias

Dr. Vivian Ota Wang shares her perspectives on data bias and outlines ideas for making data more equitable, fair, and useful to the greatest number of people, all of which would benefit cancer research.

Purple box with white text reading "National Cancer Plan"

NCI’s National Cancer Plan and Data’s Critical Role

NCI’s recently released National Cancer Plan details eight strategic goals. Our NCI CBIIT leadership team offers insight into the new Plan, with particular emphasis on how data science and related technologies will support this work and serve as a catalyst for future cancer research at NCI.

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Using Cancer Data Science to Advance Your Research

How can data science support your cancer research? Explore this helpful quick start guide to find out! We’ll show you an overview of how data science enhances cancer research and how you can get started applying it to your work.

Illustration of two people standing beside a large clipboard labeled "plan." The one individual is holding a magnifying glass up to the plan.

Your Guide to the 2023 NIH Data Management and Sharing Policy

Do you know how the 2023 NIH Data Management and Sharing Policy will impact your work? If you are seeking NCI funding, this blog is for you. We cover the key policy distinctions, implementation changes, and resources to help you navigate the process.

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Breaking Down Barriers to Sharing Cancer Data—The NIH Generalist Repository Ecosystem Initiative

Discover how NIH is working to make generalist repositories (GRs) part of the data sharing ecosystem. The goal is to minimize data sharing barriers while still taking advantage of GR convenience and usability.

Headshot of Deborah Guadalupe Duran, Ph.D.

Social Determinants of Health—At the Crossroads of Biology and Sociology

On November 3, Dr. Duran will present the next Data Science Seminar, “Social Determinants of Health.” This blog offers insight into Dr. Duran’s work and why this topic is important to her.

Clinician and patient sitting across from each other at a desk. The clinician is holding a clipboard with a paper that reads Informed Content at the top. The patient has her hands folded together as she listens to the clinician explain the document and signature requirements.

Striking a Balance Between Open Data and Individual Privacy

Technological advancements, such as machine learning and artificial intelligence, have made open data sharing more complex and put new pressure on existing laws that protect data privacy. This blog examines the privacy processes and policies that are helping address privacy concerns in today’s ever-changing “big data” landscape.

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