Cancer Data Science Pulse
Your Guide to NCI Data Science Resources for Childhood Cancer Research
Find Data Sets to Support Your Childhood Cancer Research
- View more than 6,000 cases from the Therapeutically Applicable Research to Generate Effective Treatments (TARGET) program through the Genomic Data Commons.
- Explore these two studies from the Proteomic Data Commons on Pediatric/Adolescent and Young Adult (AYA) brain tumors:
- Search the world's largest collection of childhood brain tumor data from the Pediatric Brain Tumor Atlas, available through the Gabriella Miller Kids First Data Resource Portal.
- View rare tumor pediatric research and data through MyPART. The team’s doctors and researchers publish their findings from laboratory experiments and clinical studies and write about their perspectives on rare tumor research.
For more data sets, check out the Childhood Cancer Data Initiative’s (CCDI's) Childhood Cancer Data Catalog, which supplies more than 275,000 of both NCI and non-NCI-funded data.
Get Tools You Can Use
|Download Pediatric Terminology files if you’re having trouble understanding any terms related to pediatrics.|
Compare childhood data sets with tabular and graphic visualizations of genomic data through the Molecular Targets Platform.
|Enable predictive modeling through the Human Tumor Atlas Network. The network generates atlases representing a diverse population of people with cancer, including the Center for Pediatric Tumor Cell Atlas.|
|Eliminate the need to download and store pediatric data sets by using the NCI Cloud Resources. You can also get access to on-demand computational capacity to analyze the data.|
Keep Up with NCI’s Data Science Contributions to Childhood Cancer Research
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- Researchers from Oregon Health & Science University’s Knight Cancer Institute shared Acute Myeloid Leukemia data sets that now include pediatric and AYA data. CCDI played an important role in supporting the data-sharing process.
- Using an end-to-end pipeline for cancer whole genome and transcriptome sequencing (a promising tool for routine clinical oncology practice for pediatric patients), scientists analyzed samples from 114 pediatric, adolescent, and young adult patients.
- The Childhood Cancer Data Initiative funding facilitated the sharing of Juvenile Myelomonocytic Leukemia data for researchers.
- This year, NCI launched the Molecular Characterization Initiative, which offers biomarker testing to children and AYAs with newly diagnosed central nervous system tumors.
- NCI’s Office of Data Sharing supports the Gabriella Miller Kids First Pediatric Research Program. Watch the on-demand recording of their 2022 spring webinar, which discusses the relationship between birth defects and cancer risk, collaborative developments in pediatric cancer research, and the latest technologies in data research.
Read a CBIIT Spotlight
“We can collectively learn from every child with cancer…”
Joseph Flores-Toro, Ph.D., joined the Center for Biomedical Informatics and Information Technology’s Office of Data Sharing as a fellow but became a health scientist administrator. In a blog post focusing on Dr. Flores-Toro’s journey to NCI, he shares how he turned his life’s passion into purposeful work to improve childhood cancer research.
Many pediatric and young adult cancers are different from cancers in adults, and as a result, it is difficult to understand which treatments and diagnosis methods are best for patients in this age group.
“By and large, the pediatric cancer community has done a good job sharing data whenever feasible,” says Dr. Flores-Toro in a recent interview. “NCI-funded efforts help researchers and physicians overcome barriers to data sharing through CCDI. They are bringing together resources and making them more accessible and useable to the broader community.”
“For a group of people who have had to face down cancer in themselves or their siblings so early in life, they remain some of the most positive, driven, and caring people I have ever been around. They are truly the best of us all, a gold star of humanity that deserves our full efforts and resources to ensure they have the best possible outcomes.”
In 1997, gold became the color used to represent adolescents battling cancer. “The color gold represents the heart and resilience of these incredible kids,” he adds.
While data sharing is one piece in the effort to further childhood cancer research, it’s important to remember that a tiny piece of gold can go a long way.