Harmonization of Real-World Data to Common Data Elements for the National Childhood Cancer Registry

Presentation/Conference

May 22, 2024 3:00 p.m. - 4:00 p.m. CT

AMIA 2024 Clinical Informatics Conference, Minneapolis, MN

Are you attending the 2024 AMIA Clinical Informatics Conference? Join NCI Fellow, Austin Fitts, as he presents on the National Childhood Cancer Registry (NCCR) during the May 22 afternoon sessions. The NCCR links cancer registry data with harmonized real-world data for population-level research in childhood cancer. He will also share how NCCR’s harmonization process allows for more longitudinal studies and can serve as a model for similar data harmonization initiatives. There are future plans to publish the NCCR data model and make an initial harmonized data set available to the cancer research community through the upcoming NCCR Data Platform.

Session Title: Advancing the Usability of Healthcare Data
Location: Marquette 4&5
Session Code: S19

Austin Fitts, Pharm.D.

Austin Fitts, Pharm.D., is a post-doctoral fellow at NCI’s Surveillance Research Program. He completed his Doctor of Pharmacy degree from University of Mississippi School of Pharmacy in 2021. Dr. Fitts completed residencies in hospital pharmacy at North Mississippi Medical Center and pharmacy informatics at Vanderbilt University Medical Center. His current professional interests include pharmacy informatics, pediatric oncology, and pharmacoepidemiology.