Addressing Oversight, Governance, and Privacy Issues in Linking Controlled Access Data from Different Resources
This webinar will focus on assessing the extent to which increased interoperability of NIH controlled-access repositories may lead inadvertently to gaps in oversight and control, including explicit consideration of re-identification risk escalation. In an ever-expanding and interoperable data ecosystem, these issues will be critical to address so that knowledge can effectively drive science forward while still consistently maintaining and respecting original participant consents.
This webinar is a breakout session from the July 9 webinar, Streamlining Access to Controlled Data at NIH: Tackling Challenges and Identifying Opportunities. To learn more about this topic, visit the Office of Data Science Strategy webpage.