As a data scientist, you know how challenging it can be to find high-quality data. NCI’s CCDI is working to change that—building the type of infrastructure and resources you need to find, access, integrate, and share data, as detailed in a newly published report.

These advances extend beyond pediatric and young adult cancers, influencing the care and treatment of people of all ages. NCI hopes CCDI’s innovative approaches will serve as a transformative force, driving greater progress in oncology.

CCDI’s efforts address the urgent need for improved data sharing in pediatric oncology by fostering data integration, sharing, and collaboration across institutions. Key efforts include:

• leveraging molecular data generated by the Molecular Characterization Initiative to enhance clinical trials and inform therapeutic strategies.
• building an ecosystem to make it easier for you to find, use, and share data, and to facilitate the way you visualize results and collaborate across the research community.
• translating research findings from this relatively small patient population (i.e., pediatrics and young adults up to age 39 diagnosed with pediatric cancer) to better understand disease and improve clinical outcomes.

Dr. Subhashini Jagu, first author of the report, stated, “The work we’re doing within CCDI addresses many of the barriers to effective data sharing. This includes facilitating the discovery of disparate data repositories and increasing research efficiency.”

She added, “Our goal is to accelerate research, tailor treatments based on individual genomic profiles, and improve clinical outcomes.”